Speaking of her consultant (who is a massive fan of Twilight so I obviously like her a lot), we should be getting a conclusive diagnosis from her on Thursday. She’ll also be giving us an ongoing plan for Elfie’s treatment and more advice on how to deal with her condition on an ongoing basis. We had decided about a month and a half ago that we were going to move abroad next year, possibly March, but with everything that’s happened I feel really uncomfortable with moving her so far away from the great medical treatment she’s been getting. But our plans for the future (or lack thereof right now!) are worthy of a whole other post.

Daddy has found office space working in the city centre so he is no longer working from home. I think this will be a good thing for us all – when he’s working in the study at home I find it so easy to ask him to help out. I used to spend my weeks living for the weekend and with Will at home all the days blended into one. Now I will look forward to the days he spends with Elfie and I, and will be counting the minutes til he gets home!

Elfie got weighed today and I’m pleased to say she’s back on the charts! At 17 weeks 6 days she is 10lb 13oz. Developmentally speaking she’s still slightly behind, though she’s had no official assessment I would estimate at around 3 weeks. She hasn’t rolled yet and her neck control isn’t what it should be (though it’s come on in leaps and bounds in the last fortnight). I’m looking forward to hearing some giggles, I’m sure they aren’t far away, and she is now constantly smiling which is such an improvement. She is generally a bright, happy baby – and this is all that matters to us at the moment.

Healthwise there is definitely light at the end of the tunnel and I am thoroughly looking forward to the future.